A teenager with a debilitating skin disease that has left his entire body riddled with blisters may only have days left to live. Rhys Williams was born with epidermolysis bullosa – a life-limiting condition that leaves those that have it with sores all over their body.

According to the Manchester Evening News, the terrible disease has meant that the Boltonian teen, 18, has spent most of his life unable to move. The boy, confined to a wheelchair, would often refuse to go out of the house out of fear of people staring at him.

The pain has been so fierce, that on one occasion Rhys told his mum he wished a “a butterfly would come and take him away”. As if that wasn’t gutting enough, Rhys has even planned his own funeral.

Doctors say that those with severe cases of epidermolysis bullosa don’t normally live past 30, but Rhys, who was told he may not make double figures, has defied the odds and celebrated his 18th birthday.

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In a devastating development, Rhys has now developed sepsis and pneumonia and has days left to live, according to specialists.

Rhys had been on holiday with his Dad in Dorset, when he developed symptoms that his mum Tanya Moores thought was Covid. The teenager had lost his sense of taste, but his Covid tests came back negative and it became clear he was suffering with some far more serious.

Tanya took Rhys to the hospital and he was treated for sepsis and was about to be discharged when he worsened again. Doctors realised he had pneumonia and informed Tanya of the news she’s been dreading.

She told the Manchester Evening News: “I was told to get back up to the hospital and get everyone there. He only had a matter of hours. He was really, really poorly.”

The poor boy has now been moved into end-of-life care at Derian Hospice for children and young people.

Tanya doesn’t know whether her son has long left to live. “All 15 of us sat with him,” she added. “On the Wednesday morning, they decided to end all treatment and put him on end-of-life.

“He is in the hospice right now. It could be days or a couple of weeks. I’m trying to keep things normal for the family.

“It’s just crazy. I just don’t know – my head can’t make sense of anything at the moment. If I stop doing something, that’s when I crash.

“That’s why I try and keep myself busy and occupied and surrounded. When I’m on my own and thinking, that’s when I go downhill.”

A fundraiser has now been set up to help the family pay for funeral costs. It reads: “We are starting this fund raiser now so we can give Rhys the send-off he deserves.

“The funeral director has been in and taken all the details and everything is being put into place so it’s less strain on the family in the coming days/weeks.”

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