A 15-year-old girl suffering from a rare disease could be killed by a strong smell, her family have revealed.

Martina Baker, from Maine, USA, sufferers from Mast Cell Activation Syndrome (MCAS) – an immunological condition that makes her allergic to “almost anything”, including heat, water and perfume.

Even a whiff of cooking oil or bleach could send the teenager into anaphylactic shock, and if treatment isn’t administered right away Martina could die.

She’s also highly allergic to marijuana smoke, which poses a difficult issue for the teen, as the drug was recently legalised in her home state.

But now, after raising $10,000 (£7,700), there’s a new hope for Martina as her family have been able to get her a highly-trained assistance dog who could help to save her life.

With Caiomhe at her side, Martina was recently able to sit though a movie at a cinema for the first time in years – giving her a new lease of life.

"Caiomhe has changed my life, I feel so much safer with her around, I am able to have a social life again," said Martina, who was forced to miss school and stay at home in a sealed room to avoid anaphylactic shocks.

"I lost a lot of friends after I developed MCAS, it’s hard for people to handle, for them to watch me collapse and have to take my EpiPen and be rushed to hospital all the time," added Martina, who lives in Wiscasset.

"It could be very lonely at times, but Caiomhe is always beside me protecting me, she’s a best friend for sure.

"She makes me feel less alone, she even checks up on me in the middle of the night.”

Until two and a half years ago Martina was completely healthy, but overnight she was suddenly overcome by terrifying symptoms.

"I wasn’t allergic to anything before, then one day I woke up with hives all over my body.

"I had to go to the hospital because I had an anaphylactic reaction. My throat started swelling up with hives. They treated me with an EpiPen."

The student’s problems only intensified from there.

"The hives would flare up all the time, she’d go into anaphylactic shock and we’d to have to rush her to the ER about three times a week," said Martina’s mother Loretta Morse Leighton, 48, a family therapist.

"We never knew what was triggering it really.”

Last summer a skunk sprayed off outside Martina’s bedroom window, she went into anaphylactic shock and had to be rushed to A&E.

"Afterwards she had to go and live with a friend for almost two weeks while we had her bedroom windows and door completely sealed up, it was awful," recalled Loretta.

For months doctors had been baffled by Martina’s condition.

"We took her to see a specialist in every major discipline, everything from cardiologists to psychologists," said Loretta, who eventually took Martina to an immunologist in Massachusetts named Jonathan Bayuk, who correctly diagnosed her with MCAS.

Thanks to Caiomhe and regular mast cell stabilizing drugs Martina’s anaphylactic episodes have reduced from three times a week to once every four to six weeks.

Martina often wears a mask when she goes outside and the family still has to be very careful in their home.

Loretta cleans with vinegar instead of cleaning products and has stopped using all detergents on sheets and clothing.

They must practice "odorless cooking" and spend a lot of time grilling outside, even in winter.

Martina is extremely sensitive to warmth, so her bedroom isn’t heated at all, even during the freezing Maine winters.

"I don’t know how she tolerates the cold, she lives like a penguin in there," laughed Loretta.

Last year Loretta discovered that a service dog might help her daughter.

Caiomhe was trained by Jamie Robinson, a specialist in Tucson, Arizona – one of the only people in the world to train dogs to assist MCAS patients.

Jamie trained Caiomhe to identify a long list of smells that are life-life-threatening triggers for Martina.

"A dog’s nose is about 100,000 times better than a human nose and just about every biochemical process in our bodies is indicated with a change in scent," said Jamie, 66, who runs her own service dog business called Access to Service Corp.

Jamie had Martina send her pieces of clothing she had worn so Caiomhe could get used to her scent, including when she was in anaphylaxis because, to a dog, that scent is different.

Caiomhe can now sniff out when Martina is having a reaction before Martina realizes it, because she can smell the release of histamine from her body.

Martina and three-year-old Caiomhe were first united on January 5 and have been inseparable ever since.

"Martina has endured a lot of staring, pointing and rude remarks etc, people do not understand, it’s very difficult for her but she’s stayed extremely strong, I’m so proud of her," said Loretta.

"I feel that Caiomhe was destined to be my daughter’s guardian angel.

"In the pictures of Martina now with Caiomhe, I see joy, light and life. A spark that has been missing and robbed from her since this awful disease has taken ahold of her. Caiomhe brought that back to her in a new, wonderful and amazing way.”

From more information on MCAS visit: https://tmsforacure.org/symptoms/symptoms-and-triggers-of-mast-cell-activation/

Read More

Top news stories from Mirror Online

Source: Read Full Article